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Indiana Care Services

We're here to help people living with ALS and their families
New Patients with ALS - Register today and a Care Services Coordinator will be in contact to address your needs.
We're here to help people living with ALS and their families
New Patients with ALS - Register today and a Care Services Coordinator will be in contact to address your needs.
Register Here

Those with ALS come first in everything we do. Our Chapter offers a full range of services and programs to guide and assist you as you learn more about ALS. Our services are provided at no cost to any Persons with ALS or their families, and we are proud to Indiana.

care services team button care services program clinic
caregiver support loan closet nutrition button



Care Services Team

For requests and questions about our Programs and Services, please contact our Care Services Team:

Connie Simpson, MSW, LCSW
Care Services Coordinator
Indiana Area
317.915.9888 x3
csimpson@alsaindiana.org

 

Donna Casper, MSW, LCSW
Care Services Coordinator
Indiana Area
317.915.9888 x1
dcasper@alsaindiana.org

 

 

 

 

 

 


Care Services - 2018 Patient and Caregiver Survey (Click Survey Link)

The ALS Association Indiana Chapter is committed to addressing the most pressing needs of individuals living with ALS, their caregivers, family, and friends. The Care Services goal is to build an informed, empowered, and well-cared for ALS community. Please take this survey to help guide the Chapter's Strategic Plan to best support your needs. We look forward to serving you and your family members.


Indiana ALS Care Services 

Care services is a collaborative process of assessment, planning, facilitation, care coordination, evaluation, and advocating for options and services to meet the person with ALS’s health needs through communication and available resources. Care services can enhance continuity of care, which ensures that persons with ALS are receiving the necessary care resulting in improved health outcomes, better disease planning and reduction or avoidance of complications.  

  • Care Services Coordinators
  • Multidisciplinary Clinics at IU Neuroscience Center and VA Medical Center
  • Equipment Loan Closet in partnership with National Seating & Mobility
  • Indiana Chapter Grant Program
  • Indiana Chapter is a proud supporter of Hope Loves Company (HLC) Camp 
  • Monthly Support Groups
  • Disease education and advocacy for:
    • Persons Living with ALS and Their Families
    • Caregivers
    • Military Veterans Living with ALS
    • Neurologists

Learn more about our Care Services Program here.


ALS Multidisciplinary Clinics

IU Health Neuroscience Center

The ALS Association multi-disciplinary ALS clinic provides high quality, comprehensive care for people with ALS and their families.  The clinic is proud to carry The ALS Association certification as a Center of Excellence.  The clinic provides access to numerous medical disciplines with expertise in ALS.  Appointments are scheduled on Tuesdays.  Dr. Robert Pascuzzi is the clinic medical director and the professional clinic team includes neurologists, a speech therapist, a respiratory therapist, occupational and physical therapists, a dietician, an orthotist, an equipment specialist, and a social worker. 

The ALS Association Indiana Chapter also partners with the IU Health Neuroscience Center to host art experiential workshops throughout the year, which are intended to promote hope and encouragement to our families and caregivers through the medium of art. This workshop is all inclusive and is made fully accessible to all abilities.  Learn more about our Certified Clinics here

IU Health Neuroscience Center
355 West 16th Street
Third Floor
Indianapolis, IN 46202

A Note from our IU Health Neuroscience Center Clinic

Please remember to bring your medical devices/equipment (bipap, Trilogy, AAC device- Dynavox) to clinic visits. Our clinicians can evaluate usage and make adjustments at clinic. Questions may be directed to Angi 317-963-7385.

 

Richard L. Roudebush VA Medical Center

The Indianapolis VA ALS Multidisciplinary Team offers specialized and experienced staff who are able to meet the unique and complex needs of both the individuals diagnosed with Lou Gehrig’s Disease and their family, and friends. 

Our goal is to provide individualized and holistic care that improves the quality of life of those impacted by ALS.  Beginning with your initial visit, and throughout your ALS journey, our team will be available to provide compassionate care and support. 

Richard L. Roudebush VA Medical Center
1481 West 10th Street
Third Floor, Specialty Clinic Six
Indianapolis, IN 46202
317-988-9540

VA Clinic IN team

Listed from left to right. Dr. David Miller, Rev. Lonnie Sutterfield, Dr. Mark Muckway, Fred, Bill, Joy, Breanne Fleming, Dr. Beth Whittington, Dr. Loretta VanEvery, Mitch Allard, Leah Darling, Jennifer Chambers, Dr. Erin Newton, Becky Chapman.  Not pictured: Dr. Lois Buschbacher, Chris Ingenito, Emily Digos.

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ALS Equipment Loan Closet

Donated and recycled durable medical equipment is available for loan to ALS patients, based on medical and financial need, and is free of charge.  Our Loan Equipment Closet is provided and maintained by National Seating and Mobility. 

Examples of items in our closet include:

• Lift Chairs
• Mobility Aids (including canes, rollartors, walkers, wheelchairs, power wheelchairs)
• Bathroom items (shower chairs, etc.)
• Patient Lifts

We gratefully accept donations of quality medical goods to maintain our loan closet inventory. 

donate equipment

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Indiana Chapter Grant Program

**MUST BE A RESIDENT OF INDIANA TO QUALIFY FOR THIS GRANT**

The Indiana Chapter Grant Program assists Indiana families with expenses that are not traditionally covered by insurance such as private insurance, Medicare, Medicaid and other assistance programs. It will cover, but is not limited to, nutritional assistance, emergency home care assistance (respite), travel costs related to ALS clinics or research, home modifications, auto modifications, communication devices, durable medical expense assistance. For more information please contact your Care Services Coordinator. 

  • Applicants must have an ALS or PSL diagnosis.

 

*Approval of all grants will be based on available funds* 

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Camp HLC 

Of the more than 450 Hoosiers living with ALS, 85% of them have children. Hoosiers with ALS require 24-hour assistance with their basic needs and their children often fall into the role of caregiver.  The ALS Association Indiana Chapter has partnered with Hope Loves Company (HLC) and YMCA Flat Rock Camp to bring 45 children together.  HLC Camp is a week-long camp to children and young adults between the ages of 5-17 whose lives have been affected by ALS. The camp is held at the YMCA Camp Flat Rock in St. Paul, Indiana.  Camp is a place where children burdened with the stress of this disease can find self-confidence, empathy from others and love. Days are filled with sports activities, arts and crafts, ALS emotional support and education activities, canoeing, hiking, and so much more!

Camp is free to children and young adults (ages 7-17 years old) who have or had a family member battling ALS.  To register click here

If you have any questions or need assistance please contact: YMCA 1-888-828-9622 or Hope Loves Company: 1-609-730-1144