To stay informed and engaged in important public policy issues affecting the ALS community, sign up for our advocacy text alerts. You’ll receive timely updates on important advocacy campaigns along with actions you can take to make a difference.
Text ALS to 1-855-469-2621.
Visit The ALS Association Advocacy Action Center to review our issues and connect with government leaders directly.
March 30, 2023 Senante Appropriations Committee Hearing - Tim & Stephanie Werner
To view testimony, in the Search for a meeting dropdown choose Thursday, Mar 30 - 9:00am. Testimony is at 2:26:30.
My ALS Story: Tim & Stephanie Werner
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An ALS Association Advocate is a foot soldier in the battle to defeat ALS. An ALS Association Advocate is someone who is passionate about getting involved with government at all levels to draw awareness and resources to the people affected by this disease. An ALS Association Advocate is someone who is willing step outside of their comfort zone to effect real change in the way our government responds to the needs of the ALS community. Even if you aren't a friend relative, supporter or business associate of a legislator, you can open doors through your outreach. As an ALS Association Advocate, you can help change the laws and policies that affect thousands of persons with ALS and their families.