ALS Ice Bucket Challenge Progress

 

Special Events

 * Due to the recent COVID-19 pandemic, we have had to reschedule many of our events.  Please read below for updated information.  

*Volunteer opportunities are available for all events, contact Manda Joseph, Manager, for more information (Manda@alsindiana.org or 317-614-5876)

 

Walk to Defeat ALS - Indiana 

Registration is NOW OPEN! CLICK HERE TO FIND YOUR WALK AND REGISTER.

CONTACT: Manda Joseph, Manager, Walk to Defeat ALS, Manda@alsindiana.org or 317-915-9888 x2

Indianapolis  September 19 / Victory Field 

Fort Wayne  October 10 / Tin Caps, Parkview Stadium

Evansville October 17 / Evansville Tropicana 

 


 

4th Annual Cruisin to a Cure for ALS in Memory of Carlos Lawrence Car Show - NEW DATE

Sunday, September 6, 2020

Location: Lawrenceburg, IN (Downtown)

For more information contact  Manda Joseph, Manager, Walk to Defeat ALS, Manda@alsindiana.org or 317-915-9888 x2

 


 

ALS Research Update 2020 - NEW DATE

Monday, August 17, 2020

Featuring Suma Badu, MBBS, MPH - Massachusetts General Hospital

Location: IU Neuorscience Center Indianapolis, IN

 

Our Research Update provides a platform for patients, families and the community to learn about and discuss current trends in ALS treatment and research. This is a free event with complimentary dinner and the opportunity to meet vendors and supporters of the ALS Association Indaina Chapter who are working to improve the lives of all those affected by ALS. 

To RSVP call Judith Williams at 317-915-9888 x3 or 317-670-1889

Vendors and Sponsorship contact Judith Williams, Director of Development, Judith@alsindiana.org or 317-670-1889

 

Suma Babu, MBBS, MPH

 

Suma Badu 2020 Research Update

Dr. Babu is a board-certified neurologist and neuromuscular specialist and serve as a Physician Investigator at Massachusetts General Hospital (MGH), and as Instructor in Neurology at Harvard Medical School. Her career goal is to develop innovative molecular outcome measures to determine target engagement and dose-selection in early phase II clinical trials in Amyotrophic Lateral Sclerosis (ALS). ALS is a fatal disease with a huge unmet need for effective disease modifying therapeutic options and reliable molecular, imaging and electrophysiological outcome measures for patient stratification and measuring treatment responses in clinical trials. She has over 6 years of hands-on experience in diagnosing and treating motor neuron disease patients. She serves as the site principal investigator for several multi-center Phase I, II and III clinical trials in ALS.

She contributes to ALS research in a highly resourceful and multi-disciplinary collaborative environment at the Sean M Healy & AMG Center for ALS at MGH, in close collaboration with global leaders in the field of ALS research.

She has extensive training in clinical and translational research, including a Master’s in Public Health (University of Maryland School of Public Health), Clinical and Translational Research Academy certificate program (Harvard Medical school), and the NIH-NINDS clinical trials methodology course. She has over five years of post-medical degree clinical and translational research experience at MGH (2016-Present), as well as previously at Cleveland Clinic Foundation (2011-2015) and University of Maryland School of Public Health (2006-2009).

 

 Caregiver and Patient Educational Workshop 

Save the Date: Monday, November 16 - Mirro Center, Parkview Health, Fort Wayne, Indiana 

The Caregiver and Patient Educational Workshop will feature clinic director Dr. Xia and local clinician and neurologist Dr. Chang.  This will be an opportunity for the Association to continue to provide Fort Wayne with information about the services offered through their local clinic and support those in this area living with ALS.  We will also feature local vendors and provide space and opportunity for them to share more information about how their products will benefit those patients and families impacted by ALS.

For more information or to secure your spot as a sponsor or vendor contact, Judith Williams, Judith@alsindiana.org or 317-670-1889. 

 

Kid's University postponed for 2021

For more information contact Connie Simpson, MSW, LCSW connie@alsindiana.org 

  


Bob Kravitz Golf Outing 2020 - NEW DATE

 

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Monday, August 24, 2020

Broadmoor Country Club - NEW LOCATION!!!

To purchase tickets,foursome or learn more about the Bob Kravitz Golf Outing CLICK HERE!

For more information on how to volunteer, donate, participate, or sponsor, Contact For more information contact  Judith Williams, Director of Development, Judith@alsindiana.org or 317-670-1889

  


 

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Host a One Dollar Difference Event

 

Hold a bake sale, movie night or chili cook-off to raise funds that will help create a world without ALS.

 

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